Patient Advocate

We want your volunteering experience to be meaningful and rewarding. Being part of our valued community offers opportunities to connect with others, learn more about lymphoma, enhance your wellbeing and utilise or develop your skills.

About this role

Patient and Public Involvement and Engagement (PPIE) brings people with lived experience together with researchers and partner organisations to shape meaningful improvements across research, treatment and care. By getting involved, you can help make sure developments focus on what really matters to people affected by lymphoma.

Support us in responding to emerging priorities and contribute to engagement activities that help raise the profile of lymphoma.

Please note, this role is only open to those who are at least 6 months post end of treatment or since going on active monitoring.

We're looking mainly for those who have had a diagnosis of lymphoma - however, there are also limited opportunities for family members, friends and carers, so all applications are welcome.

What's involved?

Share your ideas and experiences to help inform research and service development through opportunities such as reviewing proposals, joining forums and advisory groups, acting as patient advocate leads on research and data projects, speaking engagements, and participating in treatment appraisals.

Time commitment involves variable requests and dependant on the relevant opportunity. Activities may include online or in-person meetings, discussion groups, or workshops. We’ll explain what’s involved and the level of input needed before you choose to take part.

Where travel is involved, reasonable expenses will be reimbursed.

Induction and training will be delivered through a Zoom session with available dates to be arranged from July onwards.